My friend Susan drove me to Dana-Farber today for my monthly check-up. Blood counts are all good: wbc 10.1; hgb 10.4; platelets 128. The driving took longer than the clinic visit. My doctor's very pleased and says I can reduce the prednisone by half. Maybe I'll eat less and sleep more. My friend Ann says the tapering might make me crabby. Bring it on. My bite's always been worse that my bark.
Still pending are the tests they did on my immune system. I'm going to New York City this weekend and want to see if my new system can take the exhaust fumes, the dirt and the crowds. Can I take a subway? That's got to be the supreme test. I suspect I can handle all those hazards, but can my heart handle the excitement? Stay tuned.
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Adirondack Mountains, Feb. 2007
Tale of a Cord Blood Transplantee Who Relapses and Goes on to Have a Matched Unrelated-Donor Transplant
The Weight
Adirondack Mountains, Feb. 2007
ABOUT ME
In March 2006, I was diagnosed with a blood cancer called Acute Myelogenous Leukemia (AML). Life as I knew it came to a crashing halt. After enduring a month in the hospital where I received intense chemotherapy, I was declared "in remission." I had three additional treatments and remained cancer-free until May 2007, when I relapsed.
My only shot at survival was to have a stem cell transplant. However, my brothers' immune markers didn't match mine, and an international search of bone marrow registries found no perfect matches. A transplant using the blood from two umbilical cords was recommended. I grasped at this straw in September 2007. It seemed to work.
This blog tells the story of my transplant and recovery, replete with outrageous slings and arrows. The expression "blood is thicker than water" has new meaning for me. I remained alive due to the blood of strangers, two of them, both male. Thanks guys.
The plot thickened when I relapsed 19 months into my new remission and had to go through the same rigamarole once more. This time, I received stem cells from a matched adult donor who was identified last go round but didn't fit into the necessary time frame. Charles Dickens could have fun with this, the stuff of pulp fiction.
I remain in remission 4 years later. My donor keeps leukemic cells in check but finds interesting ways to attack my body. Chronic graft versus host disease keeps me firmly entrenched in the medical world. And so it goes.
My only shot at survival was to have a stem cell transplant. However, my brothers' immune markers didn't match mine, and an international search of bone marrow registries found no perfect matches. A transplant using the blood from two umbilical cords was recommended. I grasped at this straw in September 2007. It seemed to work.
This blog tells the story of my transplant and recovery, replete with outrageous slings and arrows. The expression "blood is thicker than water" has new meaning for me. I remained alive due to the blood of strangers, two of them, both male. Thanks guys.
The plot thickened when I relapsed 19 months into my new remission and had to go through the same rigamarole once more. This time, I received stem cells from a matched adult donor who was identified last go round but didn't fit into the necessary time frame. Charles Dickens could have fun with this, the stuff of pulp fiction.
I remain in remission 4 years later. My donor keeps leukemic cells in check but finds interesting ways to attack my body. Chronic graft versus host disease keeps me firmly entrenched in the medical world. And so it goes.
3 comments:
I have my fingers crossed that you find a great place in the city AND a bidding war starts on your house. Just don't eat any dirty water hot dogs and I think you'll be fine. :)
Good news! I am excited for you.
Taper on! It all sounds great. You are really moving along.
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