After 7 nasty months of taking this cruel but effective medication, I'm cured! My liver has off-loaded all the iron necessary, thanks to Exjade. Does this mean I'm jaded again?No dancing in the streets yet. My skin gvhd has reached a new level of misery, prompting the need to up the prednisone and apply a steroidal cream to the affected areas. I'm also up to 60 mg. of Lasix to knock me down to size. So far, it's working: I lost 6 lbs. over the weekend. I've already tapered back to 40 mg., so we'll see how it goes.
I saw my doctor today and told her I'd run 7 miles yesterday. I asked her point-blank if running the marathon was a bad idea. She admitted to never knowing anyone in my condition that's run a marathon, but I sense she doesn't know many marathoners. I only know a handful, one being my son.
What about all those marathoners without legs?
2 comments:
Seven miles...terrific! No Exjade...contratulations! I have mine out on the counter but for some reason I keep "forgetting to take it." Thanks for the reminder. Sorry about your skin. Hope it improves soon.
So glad your iron level is normal now. My ferritin level is between 1200 and 1500, and my doctor doesn't think any treatment necessary. But I worry it might damage something. I'll probably ask her again when I see her in September.
NJer
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