It's the usual medication issue, which has left me wide awake at 3 am and napping late morning. On Monday, I have an appointment with a new oncologist in NYC. I'll ask for a reduction in the p-zone, which I think will happen because my skin is much improved. If I can go to 20 mg. I think I'll be able to sleep better and not need to be nailed down during most of the day. It's great to have energy, but I've moved and am settling in so I welcome a downgrade in my activity level.
After 4 years in the womb of Dana-Farber, it will be interesting to go to a new hospital with new staff and new doctors. I don't look forward to reviewing the "story" but I'll have to at least give highlights. My records are being sent but I'm sure the doctor wants to hear it from the patient's point of view. I like to think they treat the patient and not the disease.
Here are 3 things my new doctor should know about me:
1) I have the survivability of a cockroach
2) I am knowledgeable and outspoken, and like to be involved in my medical care
3) I am starting a new life that has no room for leukemia in it