Monday, July 18, 2011

No Longer ExJaded

After 7 nasty months of taking this cruel but effective medication, I'm cured! My liver has off-loaded all the iron necessary, thanks to Exjade. Does this mean I'm jaded again?

No dancing in the streets yet. My skin gvhd has reached a new level of misery, prompting the need to up the prednisone and apply a steroidal cream to the affected areas. I'm also up to 60 mg. of Lasix to knock me down to size. So far, it's working: I lost 6 lbs. over the weekend. I've already tapered back to 40 mg., so we'll see how it goes.

I saw my doctor today and told her I'd run 7 miles yesterday. I asked her point-blank if running the marathon was a bad idea. She admitted to never knowing anyone in my condition that's run a marathon, but I sense she doesn't know many marathoners. I only know a handful, one being my son.

What about all those marathoners without legs?

Tuesday, July 12, 2011

Medical and Fundraising News

I took a week off and did nothing. Well, I did train for the NYC Marathon which I'm running in November with Team in Training. I spoke with my ophthalmologist's office while I was away and it looks like I'll be getting my lenses August 10th. One more month of poor vision and extreme discomfort. I'll manage. I went to photopheresis yesterday and can report that my bloods counts are almost normal. I'm still struggling with edema and now take 40 mg. of Lasix per day, which has become a mere "maintenance" dose.

As for fundraising, please visit my Team in Training site if you haven't already done so. There you will find the secret to my running "success."