Tuesday, July 12, 2011

Medical and Fundraising News

I took a week off and did nothing. Well, I did train for the NYC Marathon which I'm running in November with Team in Training. I spoke with my ophthalmologist's office while I was away and it looks like I'll be getting my lenses August 10th. One more month of poor vision and extreme discomfort. I'll manage. I went to photopheresis yesterday and can report that my bloods counts are almost normal. I'm still struggling with edema and now take 40 mg. of Lasix per day, which has become a mere "maintenance" dose.

As for fundraising, please visit my Team in Training site if you haven't already done so. There you will find the secret to my running "success."



Anonymous said...

Hey PJ,
My name is Liz and I have been following your blog for a while now. I am sorry to hear about the problems you are having with your digestive tract. Probiotics are helpful, also try Kifir if you can find it anywhere. You can ask the pharmacist if they have it or if it will help you.
That said, since your blog is a great resource for someone going through cancer I wanted to reach out to you to see if you were interested in a new online social support network (that I am the community manager of!) called I Had Cancer. It is a new and free social support network focused on connecting people based on experiences with cancer so that they can easily communicate with one another and share information. I would love to tell you more if you are interested, so please let me know! Because I was so struck by your writing I would love to send you an early-access pass with extra invites for others you may know going through this journey.

Either way, thank you so much for your writing. Take care and best regards.
-Liz Belilovskaya

Ann said...

Are you taking 40mg of lasix or prednisone? I'm sorry the edema continues to be a problem. I never got a straight answer as to why I started retaining fluids while on steroids. It's one hell of an uncomfortable feeling on top of everything else. Happy to hear you took a week off for yourself.