I was proud of myself yesterday. My doctor's office called to tell me I had an appointment scheduled with a hepatologist, a liver doctor, for Friday. I asked the receptionist why, but she didn't know. My doctor was supposed to get back to me but as of now, has not.
My first reaction was a sinking feeling in the pit of my stomach. Many of you know what this feels like. I went on line and researched what hepatology is. A hepatologist treats liver diseases and disorders. I know my liver issues relate to my transplant, and that the graft versus host disease that plagues my body tissues means my donor is doing his job. I'm coming up on my 2-year anniversary next week, a milestone. I remind myself of this every time my eyes get so dry I feel they're being poked with needles, or my body swells with an extra ten pounds of water.
These problems haven't slowed me down. I spent a week in France and Spain with my daughter last week. The France part was relaxing since we stayed with friends at their country home outside of Toulouse. The 2-day Barcelona whirlwind almost did me in, but I had fun and managed to survive. We ate a lot, walked a lot and saw some amazing things.
After a week of not training for the marathon, I went to a hill workout Tuesday night and walked away without limping. I plan to run for 45 minutes this morning while it's still cool. I'll let you know what Dr. Liver has to say.
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23 comments:
Don't you just love those mystery appointments that get sprung on you without an accompanying explanation? Your doctor probably wants another opinion on how best to resolve the issue. That's the reason I was given the day before my doctor did something similar to me for GvHD of the liver. You're a pro at these things, but if a little ativan would help, go ahead and take it. Who doesn't like feeling generally relaxed thanks to magical ativan? Keep us posted. Happy to see that you've made it back from Europe.
Yes, adding a new doctor to the list is always a little unnerving, but you kept your mind from running away from you. If it was something bad, they'd tell you instead of simply telling you that you're going to see another doctor. I agree with Ann that they are probably just looking at different ways of resolving the GVHD in your liver. Glad you had a good time in Europe. I am in awe of the running you are doing.
there was a period of time when i kept going to the emergency room for chest pains and shortness of breath. my heart and everything checked out perfect. i went to the doctor and described these episodes i was having and he prescribed ativan 2mg and i have never experienced the tightness of the chest as often once i discovered i was having panic attacks. it is very helpful and not too sedative, and it might not work for everyone, if possible try small rx or samples first.
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