Tuesday, September 20, 2011

A New Drug

My oncologist put me on Cellcept yesterday, an immune suppressant that might have a little more luck fighting the graft versus host disease that keeps me from ever feeling "normal." I'll be taking this in conjunction with Rapamune (sirolimus) for two weeks and then eliminate the latter. This means I will be more susceptible to infection as my fighting whites will be working with fewer bullets, or defective ones. I'll counter that with sanitary vigilance such as fleeing from coughs and compulsive hand-washing. It's amazing how quickly you can return to this obsessive way of thinking.

I've lost my prednisone puffiness as well as some of the water weight that's been making me blimp-like for the past few months. I wouldn't say I feel spry, but I've traded the cement boots for lighter footwear. I still have fat little baby hands, which would be adorable if they weren't covered with red splotches and scales.

I have yoga today, which is always a treat since I stretch my contracted tendons/ligaments and muscles to the point where I feel almost limber. Namaste.

2 comments:

DAVID HAAS said...

Hello,
I have a question about your blog. Please email me!
Thanks,
David

Ann said...

Cellcept makes me vomit every single time I took it. After each transplant, I'd have to take it for close to 100 days in conjunction with tacrolimus. I hope it does the trick for you & brings the GvHD under control.