I got the news of the leukemia cutis in the recovery area after my cataract surgery. Dr. Giralt called me on my cell with the news. I was devastated. Thankfully, my friend Dianne was picking me up to take me home, so she helped make me feel a little better.
Ironically, the day I found out the leukemia was trying to get me again, was the anniversary of my 3rd transplant. I should have been celebrating with champagne. Instead, I took ativan.
The first appointment I had the next day was with my ophthalmologist to check out my eye. Then I met with my oncologist, Dr. Giralt, who did a biopsy, ordered the PET scan and explained the various options to me, depending on whether the leukemia was in the marrow or not. Fortunately Marty came with me. I was a bit overwhelmed.
I didn't want to broadcast this because I didn't want to upset anyone. Only a handful of people knew. I can write this post because when I met with the radiation oncologist this morning to find out about targeted therapy, Dr. Giralt called to say the marrow was clean.
After some measurements and what-not, I'll receive 12 zaps to the nipple, one each day. Doesn't sound so bad. Dr. Giralt also mentioned a series of shots I'll receive 5 shots in my thigh on, one a day for 5 days each month.