Monday, August 13, 2012

Bone Marrow Biopsy Negative

I thought my life was ending, again. The small mass on my nipple turned out to be leukemia cutis, which is an isolated pocket that manages to fool the anti-leukemia T-cells and find sanctuary at skin level. These extramadullary sites can appear anywhere in the body, so I had a PET scan to check for other hideaways. I also had my 18th bone marrow biopsy, which hurt like hell.

I got the news of the leukemia cutis in the recovery area after my cataract surgery. Dr. Giralt called me on my cell with the news. I was devastated. Thankfully, my friend Dianne was picking me up to take me home, so she helped make me feel a little better.

Ironically, the day I found out the leukemia was trying to get me again, was the anniversary of my 3rd transplant. I should have been celebrating with champagne. Instead, I took ativan.

The first appointment I had the next day was with my ophthalmologist to check out my eye. Then I met with my oncologist, Dr. Giralt, who did a biopsy, ordered the PET scan and explained the various options to me, depending on whether the leukemia was in the marrow or not. Fortunately Marty came with me. I was a bit overwhelmed.

I didn't want to broadcast this because I didn't want to upset anyone. Only a handful of people knew. I can write this post because when I met with the radiation oncologist this morning to find out about targeted therapy, Dr. Giralt called to say the marrow was clean.

After some measurements and what-not, I'll receive 12 zaps to the nipple, one each day. Doesn't sound so bad. Dr. Giralt also mentioned a series of shots I'll receive 5 shots in my thigh on, one a day for 5 days each month.


Onward.









34 comments:

Ann said...

There are no words. I know you're in fantastic hands with Dr. Giralt and that you're an ass-kicker bar none. Hugs. Ann.

Ann said...

There are no words. I know you're in fantastic hands with Dr. Giralt and that you're an ass-kicker bar none. Hugs. Ann.

Ronni Gordon said...

Geez. What a scare. I'm so glad your marrow was clean. The rest seems like a pain but manageable. Echoing Ann, it's great that you have a good doctor who you trust. Keep on truckin' on!

Sue said...

I agree with Ann and Ronni. The only thing I can add is that you have a wonderful support system in Marty and your children and all of your friends that love and care about you. Hang in there!

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