Monday, October 3, 2011


Skin cancer was so last week. Today I went to see my internist for a troubling issue that my oncologist doesn't seem worried about: frequent urge to urinate and blood in the urine. So, as with the dermatologist, I took my health into my own hands to see what needs to be done.

I told the doctor the saga of the kidney stone, the pain, the blood in my urine, and an unusual feeling in my bladder that makes it seem like I have to pee constantly. It's different from the Lasix urgency, but added together, I feel I can never be far from a bathroom. She had me do a urine culture and gave me a referral to a urologist for a cystoscopy, a procedure that allows a bird's-eye view of the inside of the bladder. What will they be looking for? Bladder stones, infection, structural abnormalities, foreign objects--I don't want to know about foreign objects, especially if it's my long-dead fetal twin.

Oh, and they also check for cancer by scraping cells from the top layer. I've never had this procedure done, and I'm not looking forward to it. I'll make an appointment tomorrow after I see the skin surgeon.

In the ho-hum category, my oncologist told me to stop taking rapamune (sirolimus) after over two years on the immunosuppressant. I asked if I should increase the prednisone (from 10 to 20 mg.) and she said it wouldn't be a bad idea. She's concerned about the future of my bones, but since my quality of life is currently in the toilet, it's worth trying to see if the increase can help me function like a real person again, not someone sitting in the back row of my life.

1 comment:

Ann said...

You, Ronni, and I seem to be competing for the "What now?" award lately. I'm relieved that you saw the dermatologist and internist in spite of your Tx specialist's insouciance. I'm also a little worried by her relaxed attitude toward the issues that lead up to you taking your health into your own hands. Could you have a BK infection? Your symptoms all fit, including the blood in the urine. I've had it more than once and what you've described is generally what I experienced. I hope you (and Ronni) can catch a break soon. I'll be checking up on you both.